Question:
Is there a message board or newsgroups I might go to relating to sjogren’s syndrome? Any information would be most appreciative. Suzanne
Response:
There is no Sjogren’s (SjS) newsgroup, but there are a couple of newslists. For more information go to: http://dry.org If you have trouble with this please write me and I will send you more specific instructions. Susan Tillery – Hide quoted text — Show quoted text – > Is there a message board or newsgroups I might go to relating to sjogren’s > syndrome? Any information would be most appreciative. Suzanne
Response:
> Is there a message board or newsgroups I might go to relating to sjogren’s > syndrome? Any information would be most appreciative. Suzanne
Here is a post from the past that has lots of good stuff in it for you. Harv A good place to begin is http://dry.org/ There you can find articles on SjS and links to websites on the subject. You will also find a couple of email lists for SjS which you might find helpful. The MedlinePlus is also a good resource for SjS: http://www.nlm.nih.gov/medlineplus/sjogrenssyndrome.html I highly recommend "The New Sjogren’s Syndrome Handbook" published by the Sjogren’s Syndrome Foundation http://www.sjogrens.org/ as well. I use a preservative free artificial tear and a night time dry eye ointment both of which are available over the counter. You also should see a rheumatologist and an ophthalmologist if you have not already. I hope this helps, Susan Tillery – Hide quoted text — Show quoted text – > My endocrinologist yesterday confirmed that my dry eye may be influence at > least in part by my thyroiditis (there is a blood test to see if you carry the > antibody that causes thyroid-influenced dry eye, apparently). He and my > optician both say that my thyroid levels are normal and that the more probable > cause of my dry eye is another autoimmune disorder, Sjogren’s Syndrome. > This is hell on earth. I’m taking Flax Seed Oil now; I’ll take anything on > earth that’s legal and that can possibly help me. Any e-mail, information on > Sjogren’s, or posts more than welcome. > Thanks, > Hilary
Response:
Thanks Harv, My words exactly, ;-) LOL Susan Tillery – Hide quoted text — Show quoted text -> Is there a message board or newsgroups I might go to relating to sjogren’s > syndrome? Any information would be most appreciative. Suzanne > Here is a post from the past that has lots of good stuff in it for you. > Harv
Response:
> Thanks Harv, > My words exactly, ;-) LOL
LOLOL so they were,,,uhhh are,,,well you know. LOLOL Harv