Maybe Paul Burrell will be the next Brit to claim he has IBD. I hate him!!! A loyal royal watcher… Nora – Hide quoted text — Show quoted text – >Anything like this from a "celebrity" is to be regarded with suspicion. >Here is the UK, several celebs have suddenly announced that they’ve got CD and grabbed some cheap publicity for their fading careers by so doing. In all their articles however, I’ve noticed the sort of howlers that no real sufferer would ever make !
>May 24, 2003 — HOWARD Stern sidekick Robin Quivers surprised listeners = >yesterday by announcing that her recent dramatic weight loss was the = >result of an intestinal condition she feared might kill her.=20 >"I was dying," Quivers said, reluctant to talk about her illness until = >Stern pressed her for details. "I had a big problem. I was in really bad = >shape and really thought I was going to die."=20 >Quivers said she suffered from what she called "inflammatory syndrome" = >but described symptoms that fit both Inflammatory Bowel Disease and = >Irritable Bowel Syndrome, the precise causes of which are unknown.=20
<snipped> Did she mention seeing a dr before she launched into this odd liquid conconction? She indicates she still can’t eat most food….did she self-diagnose? I assume she’s paid well enough to get a medical opinion…
Anything like this from a "celebrity" is to be regarded with suspicion. Here is the UK, several celebs have suddenly announced that they’ve got CD and grabbed some cheap publicity for their fading careers by so doing. In all their articles however, I’ve noticed the sort of howlers that no real sufferer would ever make !
Who has said it in the UK? Just being nosy, lol I’ve heard of the voice coach (?) on Fame Academy, and Kane (from Emerdale, but that was years ago). Mel 
Anything like this from a "celebrity" is to be regarded with suspicion. Here is the UK, several celebs have suddenly announced that they’ve got CD and grabbed some cheap publicity for their fading careers by so doing. In all their articles however, I’ve noticed the sort of howlers that no real sufferer would ever make !
who on earth would fake such a thing. i highly doubt it. i have not heard of anyone in the Us faking IBD or any other disease. Robin Quivers is a bright articulate woman. why on earth would she do that? please! Anything like this from a "celebrity" is to be regarded with suspicion. Here is the UK, several celebs have suddenly announced that they’ve got CD and grabbed some cheap publicity for their fading careers by so doing. In all their articles however, I’ve noticed the sort of howlers that no real sufferer would ever make !
This made me laugh out loud, but is too true! Jay – Hide quoted text — Show quoted text – >Several years ago Howard Stern called Rush Limbaugh a "big fat pumpkin >head". History has proven him right about that. >- Jeff > I don’t trust anything from Howard Stern. > > Very interesting…thanks for posting. Nora > > >from the NY Post > > >May 24, 2003 > > >HOWARD STERN SIDEKICK SECRET SHOCKS LISTENERS: > > >I ALMOST STARVED TO DEATH > > >By JOHN MAINELLI > > >May 24, 2003 — HOWARD Stern sidekick Robin Quivers surprised listeners > yesterday by announcing that her recent dramatic weight loss was the >result > of an intestinal condition she feared might kill her. > > >"I was dying," Quivers said, reluctant to talk about her illness until > Stern pressed her for details. "I had a big problem. I was in really bad > shape and really thought I was going to die." > > >Quivers said she suffered from what she called "inflammatory syndrome" > but described symptoms that fit both Inflammatory Bowel Disease and > Irritable Bowel Syndrome, the precise causes of which are unknown. > > >"I didn’t eat, period," she said. "None of my system was working, so my > body wasn’t processing food at all – the food would just lie in my >digestive > tract. > > >"I was sick as a dog. I was even having heart palpitations," said > Quivers, 50, who lost 60 pounds in the last few months. "I literally could > not move – I was sluggish, full of water, and all my joints were aching." > > >Quivers revealed that, at one point, she went 21 days without eating > solid food, subsisting on a liquid concoction recommended by magician >David > Blaine. "I thanked David profusely," she said. "I ran into him one day and > said, ‘You saved my life.’ " > > >Quivers initially declined to disclose the ingredients in the syrupy, > yellow liquid staffers had seen her drinking. > > >After prodding from Stern, she said it was "a very alkaline, acid-base > balance" liquid that included real maple syrup, lemon juice, cayenne >pepper > and water. [Ed. - I believe this is the diet Robin used: Stanley Burroughs > Master Cleanser. As usual, be careful, see your doctor before starting any > diet, and I won't be held responsible for any results, good or bad!] > > >Quivers, who said she also suffers from hyperthyroidism, said she can >now > eat some solid food – but no bread, dairy products, most fruits or raw > vegetables – and averages about a meal a day. > > >"I feel great – probably better than I have my entire life," she said. > "But I could easily go back to the sick room any second. I have to stay on >a > strict regimen."
its from the ny post not howard.. all i am asking is if robin quivers has ibd.. not about the stupid and dangerous drink..
– Hide quoted text — Show quoted text -> I don’t trust anything from Howard Stern. > Very interesting…thanks for posting. Nora > >from the NY Post > >May 24, 2003 > >HOWARD STERN SIDEKICK SECRET SHOCKS LISTENERS: > >I ALMOST STARVED TO DEATH > >By JOHN MAINELLI > >May 24, 2003 — HOWARD Stern sidekick Robin Quivers surprised listeners > yesterday by announcing that her recent dramatic weight loss was the result > of an intestinal condition she feared might kill her. > >"I was dying," Quivers said, reluctant to talk about her illness until > Stern pressed her for details. "I had a big problem. I was in really bad > shape and really thought I was going to die." > >Quivers said she suffered from what she called "inflammatory syndrome" > but described symptoms that fit both Inflammatory Bowel Disease and > Irritable Bowel Syndrome, the precise causes of which are unknown. > >"I didn’t eat, period," she said. "None of my system was working, so my > body wasn’t processing food at all – the food would just lie in my digestive > tract. > >"I was sick as a dog. I was even having heart palpitations," said > Quivers, 50, who lost 60 pounds in the last few months. "I literally could > not move – I was sluggish, full of water, and all my joints were aching." > >Quivers revealed that, at one point, she went 21 days without eating > solid food, subsisting on a liquid concoction recommended by magician David > Blaine. "I thanked David profusely," she said. "I ran into him one day and > said, ‘You saved my life.’ " > >Quivers initially declined to disclose the ingredients in the syrupy, > yellow liquid staffers had seen her drinking. > >After prodding from Stern, she said it was "a very alkaline, acid-base > balance" liquid that included real maple syrup, lemon juice, cayenne pepper > and water. [Ed. - I believe this is the diet Robin used: Stanley Burroughs > Master Cleanser. As usual, be careful, see your doctor before starting any > diet, and I won't be held responsible for any results, good or bad!] > >Quivers, who said she also suffers from hyperthyroidism, said she can now > eat some solid food – but no bread, dairy products, most fruits or raw > vegetables – and averages about a meal a day. > >"I feel great – probably better than I have my entire life," she said. > "But I could easily go back to the sick room any second. I have to stay on a > strict regimen."
Several years ago Howard Stern called Rush Limbaugh a "big fat pumpkin head". History has proven him right about that. – Jeff
– Hide quoted text — Show quoted text -> I don’t trust anything from Howard Stern. > Very interesting…thanks for posting. Nora > >from the NY Post > >May 24, 2003 > >HOWARD STERN SIDEKICK SECRET SHOCKS LISTENERS: > >I ALMOST STARVED TO DEATH > >By JOHN MAINELLI > >May 24, 2003 — HOWARD Stern sidekick Robin Quivers surprised listeners > yesterday by announcing that her recent dramatic weight loss was the result > of an intestinal condition she feared might kill her. > >"I was dying," Quivers said, reluctant to talk about her illness until > Stern pressed her for details. "I had a big problem. I was in really bad > shape and really thought I was going to die." > >Quivers said she suffered from what she called "inflammatory syndrome" > but described symptoms that fit both Inflammatory Bowel Disease and > Irritable Bowel Syndrome, the precise causes of which are unknown. > >"I didn’t eat, period," she said. "None of my system was working, so my > body wasn’t processing food at all – the food would just lie in my digestive > tract. > >"I was sick as a dog. I was even having heart palpitations," said > Quivers, 50, who lost 60 pounds in the last few months. "I literally could > not move – I was sluggish, full of water, and all my joints were aching." > >Quivers revealed that, at one point, she went 21 days without eating > solid food, subsisting on a liquid concoction recommended by magician David > Blaine. "I thanked David profusely," she said. "I ran into him one day and > said, ‘You saved my life.’ " > >Quivers initially declined to disclose the ingredients in the syrupy, > yellow liquid staffers had seen her drinking. > >After prodding from Stern, she said it was "a very alkaline, acid-base > balance" liquid that included real maple syrup, lemon juice, cayenne pepper > and water. [Ed. - I believe this is the diet Robin used: Stanley Burroughs > Master Cleanser. As usual, be careful, see your doctor before starting any > diet, and I won't be held responsible for any results, good or bad!] > >Quivers, who said she also suffers from hyperthyroidism, said she can now > eat some solid food – but no bread, dairy products, most fruits or raw > vegetables – and averages about a meal a day. > >"I feel great – probably better than I have my entire life," she said. > "But I could easily go back to the sick room any second. I have to stay on a > strict regimen."
Very interesting…thanks for posting. Nora – Hide quoted text — Show quoted text ->from the NY Post >May 24, 2003 >HOWARD STERN SIDEKICK SECRET SHOCKS LISTENERS: >I ALMOST STARVED TO DEATH >By JOHN MAINELLI >May 24, 2003 — HOWARD Stern sidekick Robin Quivers surprised listeners yesterday by announcing that her recent dramatic weight loss was the result of an intestinal condition she feared might kill her. >"I was dying," Quivers said, reluctant to talk about her illness until Stern pressed her for details. "I had a big problem. I was in really bad shape and really thought I was going to die." >Quivers said she suffered from what she called "inflammatory syndrome" but described symptoms that fit both Inflammatory Bowel Disease and Irritable Bowel Syndrome, the precise causes of which are unknown. >"I didn’t eat, period," she said. "None of my system was working, so my body wasn’t processing food at all – the food would just lie in my digestive tract. >"I was sick as a dog. I was even having heart palpitations," said Quivers, 50, who lost 60 pounds in the last few months. "I literally could not move – I was sluggish, full of water, and all my joints were aching." >Quivers revealed that, at one point, she went 21 days without eating solid food, subsisting on a liquid concoction recommended by magician David Blaine. "I thanked David profusely," she said. "I ran into him one day and said, ‘You saved my life.’ " >Quivers initially declined to disclose the ingredients in the syrupy, yellow liquid staffers had seen her drinking. >After prodding from Stern, she said it was "a very alkaline, acid-base balance" liquid that included real maple syrup, lemon juice, cayenne pepper and water. [Ed. - I believe this is the diet Robin used: Stanley Burroughs Master Cleanser. As usual, be careful, see your doctor before starting any diet, and I won't be held responsible for any results, good or bad!] >Quivers, who said she also suffers from hyperthyroidism, said she can now eat some solid food – but no bread, dairy products, most fruits or raw vegetables – and averages about a meal a day. >"I feel great – probably better than I have my entire life," she said. "But I could easily go back to the sick room any second. I have to stay on a strict regimen."
I don’t trust anything from Howard Stern.
> Very interesting…thanks for posting. Nora >from the NY Post >May 24, 2003 >HOWARD STERN SIDEKICK SECRET SHOCKS LISTENERS: >I ALMOST STARVED TO DEATH >By JOHN MAINELLI >May 24, 2003 — HOWARD Stern sidekick Robin Quivers surprised listeners
yesterday by announcing that her recent dramatic weight loss was the result of an intestinal condition she feared might kill her. >"I was dying," Quivers said, reluctant to talk about her illness until
Stern pressed her for details. "I had a big problem. I was in really bad shape and really thought I was going to die." >Quivers said she suffered from what she called "inflammatory syndrome"
but described symptoms that fit both Inflammatory Bowel Disease and Irritable Bowel Syndrome, the precise causes of which are unknown. >"I didn’t eat, period," she said. "None of my system was working, so my
body wasn’t processing food at all – the food would just lie in my digestive tract. >"I was sick as a dog. I was even having heart palpitations," said
Quivers, 50, who lost 60 pounds in the last few months. "I literally could not move – I was sluggish, full of water, and all my joints were aching." >Quivers revealed that, at one point, she went 21 days without eating
solid food, subsisting on a liquid concoction recommended by magician David Blaine. "I thanked David profusely," she said. "I ran into him one day and said, ‘You saved my life.’ " >Quivers initially declined to disclose the ingredients in the syrupy,
yellow liquid staffers had seen her drinking. >After prodding from Stern, she said it was "a very alkaline, acid-base
balance" liquid that included real maple syrup, lemon juice, cayenne pepper and water. [Ed. - I believe this is the diet Robin used: Stanley Burroughs Master Cleanser. As usual, be careful, see your doctor before starting any diet, and I won't be held responsible for any results, good or bad!] >Quivers, who said she also suffers from hyperthyroidism, said she can now
eat some solid food – but no bread, dairy products, most fruits or raw vegetables – and averages about a meal a day. >"I feel great – probably better than I have my entire life," she said.
"But I could easily go back to the sick room any second. I have to stay on a strict regimen." – Hide quoted text — Show quoted text –
from the NY Post May 24, 2003 HOWARD STERN SIDEKICK SECRET SHOCKS LISTENERS: I ALMOST STARVED TO DEATH By JOHN MAINELLI May 24, 2003 — HOWARD Stern sidekick Robin Quivers surprised listeners yesterday by announcing that her recent dramatic weight loss was the result of an intestinal condition she feared might kill her. "I was dying," Quivers said, reluctant to talk about her illness until Stern pressed her for details. "I had a big problem. I was in really bad shape and really thought I was going to die." Quivers said she suffered from what she called "inflammatory syndrome" but described symptoms that fit both Inflammatory Bowel Disease and Irritable Bowel Syndrome, the precise causes of which are unknown. "I didn’t eat, period," she said. "None of my system was working, so my body wasn’t processing food at all – the food would just lie in my digestive tract. "I was sick as a dog. I was even having heart palpitations," said Quivers, 50, who lost 60 pounds in the last few months. "I literally could not move – I was sluggish, full of water, and all my joints were aching." Quivers revealed that, at one point, she went 21 days without eating solid food, subsisting on a liquid concoction recommended by magician David Blaine. "I thanked David profusely," she said. "I ran into him one day and said, ‘You saved my life.’ " Quivers initially declined to disclose the ingredients in the syrupy, yellow liquid staffers had seen her drinking. After prodding from Stern, she said it was "a very alkaline, acid-base balance" liquid that included real maple syrup, lemon juice, cayenne pepper and water. [Ed. - I believe this is the diet Robin used: Stanley Burroughs Master Cleanser. As usual, be careful, see your doctor before starting any diet, and I won't be held responsible for any results, good or bad!] Quivers, who said she also suffers from hyperthyroidism, said she can now eat some solid food – but no bread, dairy products, most fruits or raw vegetables – and averages about a meal a day. "I feel great – probably better than I have my entire life," she said. "But I could easily go back to the sick room any second. I have to stay on a strict regimen."
>Without the Enbrel, living in Whistler would be hell. This is a town that is >all about being physically active, with skiing and snowshoeing in the >winter, and boating, biking and hiking in the summer. If you’ve never heard >of the place check out www.whistler-blackcomb.com . It is a beautiful place.
You live in paradise, that is for sure. Not that I have ever been to Whistler, but I have certainly seen enough pictures. I feel that most of our province is like paradise. It is a beautiful place to live. Glad enbrel allows you to enjoy life. Rose
GO AWAY!
– Hide quoted text — Show quoted text -> " Sh*t, sh*t, sh*t!!! I’m now officially depressed and pissed off, both at the > disease and myself for getting my hopes up!! > Rebecca Ford" > You want a cure work for it..
"GO AWAY!" Have you told your arthritis that… We can do more than hope, but we need to band together and push for a cure. If not for yourself than your your kids….
"to see if that miracle has happened for us and to us. " Can’t say I ever seen a miracle on anybody… I have seen some very lucky people, but not what I would call a miracle…
Specialsearcher, I must say your reply to Rebecca was totally insensitive and rude!!! Perhaps in the future if you can’t be supportive or compassionate you would do well to just keep quiet!!! Sheesh!!! Donna G
A story of love and how good life can be. A tale of a home in heaven where exercise is king. Oooh, take care of your dog because he can not stand to see you leave. Harv
> Specialsearcher, I must say your reply to Rebecca was totally > insensitive and rude!!! Perhaps in the future if you can’t be > supportive or compassionate you would do well to just keep quiet!!! > Sheesh!!! > Donna G
LOLOLOL Girls, girls now stop that. LOLOLOL or not. Harv
"Specialsearcher, I must say your reply to Rebecca was totally insensitive and rude!!! Perhaps in the future if you can’t be supportive or compassionate you would do well to just keep quiet!!! Sheesh!!! Donna G" A cure is what I want, but it wont happen unless we push for it. The only one besides us that might benefit from a cure is the insurance industry; even then, only if its cheap probably lol… So its up to us to push for it, dreaming about it wont make it happen.
" Sh*t, sh*t, sh*t!!! I’m now officially depressed and pissed off, both at the disease and myself for getting my hopes up!! Rebecca Ford" You want a cure work for it..
Feel better soon! It’s so discouraging when all symptoms are returning in no time after skipping injections. Nothing makes me realise how much Enbrel actually is helping me more than that. I’ve been off Enbrel for 10 days because of tonsillitis and can’t wait until the injection on Monday. Hope you’ll bounce back quickly. Nina – Hide quoted text — Show quoted text -> Why do I do this to myself? I’ve been doing fairly well in general, although > I suspect my thyroid is lacking again. But anyway, the RA has been good, so > good that I skipped an Enbrel dose, figuring it’d help my minor sinus > infection. Skipped two more, hoping that maybe I’m finally in that 10% who > have a real remission. Last shot was a week ago Monday morning. I’ve been > dragging energywise yesterday and today. Now my fingers are swelling and > achy and I’m getting that beginning pinprick of pain in my hips and > shoulders. Looks like an injection for dinner if I don’t want to be > completely incapacitated tomorrow. Damn, damn, damn!!!! I was kind of hoping > that with a new home in a new country, starting a new life I could trick my > body into being well. Sh*t, sh*t, sh*t!!! I’m now officially depressed and > pissed off, both at the disease and myself for getting my hopes up!! > Rebecca Ford
"to see if that miracle has happened for us and to us. " Can’t say I ever seen a miracle on anybody… I have seen some very lucky people, but not what I would call a miracle… ****somehow, it doesn’t surprise me that you would say that. kate
"Specialsearcher, I must say your reply to Rebecca was totally insensitive and rude!!! Perhaps in the future if you can’t be supportive or compassionate you would do well to just keep quiet!!! Sheesh!!! Donna G" A cure is what I want, but it wont happen unless we push for it. The only one besides us that might benefit from a cure is the insurance industry; even then, only if its cheap probably lol… So its up to us to push for it, dreaming about it wont make it happen. ****you don’t have a clue! you want a cure for which form of arthritis? your blanket statement shows how clueless you are, as well as, rude and uncaring. somehow, i think you are a troll. kate
> sorry, Harv, but it’s not funny to me…and it’s not a " girls, girls" etc > thing…neither would it be a "boys, boys"…we are all adults. > Comments that do nothing to show support and give encouragement to a person > in pain is not acceptable to me. > donnah
Ok, you have a good point. I see what you are talking about now. Harv
AMEN Donnah!!! I don’t think it’s particularly funny either! I think it is rude and uncalled for. This specialsearcher person has done the same thing on a number of occassions! Donna G
Specialsearcher, that is fine to want a cure—heck, we ALL want a cure, but that still does not give one the right to respond rudely to another. This is, after all, a support group. Supporting one another is what we do and will continue to do until a cure is found!!! I stand by my earlier post that your response to Rebecca was rude and unnecessary!!! Donna G
I was staying out of it as I figured it was a troll and even feeling good, it’s not worth the waste of energy. Really, short of becoming a research scientist or having gobs of money and/or marrying into a pharmaceutical family, I’m not sure what I can do. — Rebecca Ford
– Hide quoted text — Show quoted text – > "Specialsearcher, I must say your reply to Rebecca was totally > insensitive and rude!!! Perhaps in the future if you can’t be > supportive or compassionate you would do well to just keep quiet!!! > Sheesh!!! > Donna G" > A cure is what I want, but it wont happen unless we push for it. The only > one > besides us that might benefit from a cure is the insurance industry; even > then, > only if its cheap probably lol… So its up to us to push for it, dreaming > about it wont make it happen. > ****you don’t have a clue! you want a cure for which form of arthritis? > your blanket statement shows how clueless you are, as well as, rude and > uncaring. somehow, i think you are a troll. > kate
why don’t you identify yourself? your pissy little comments are mean spirited.
– Hide quoted text — Show quoted text -> "GO AWAY!" > Have you told your arthritis that… > We can do more than hope, but we need to band together and push for a cure. If > not for yourself than your your kids….
sorry, Harv, but it’s not funny to me…and it’s not a " girls, girls" etc thing…neither would it be a "boys, boys"…we are all adults. Comments that do nothing to show support and give encouragement to a person in pain is not acceptable to me. donnah – Hide quoted text — Show quoted text -> Specialsearcher, I must say your reply to Rebecca was totally > insensitive and rude!!! Perhaps in the future if you can’t be > supportive or compassionate you would do well to just keep quiet!!! > Sheesh!!! > Donna G > LOLOLOL Girls, girls now stop that. LOLOLOL or not. > Harv
well said Donna. Who the heck is the annonymous searcher and I sure hope he/she finds a cure for a rude and bad attitude quickloy-that would indeed be a miracle. M – Hide quoted text — Show quoted text ->sorry, Harv, but it’s not funny to me…and it’s not a " girls, girls" etc >thing…neither would it be a "boys, boys"…we are all adults. >Comments that do nothing to show support and give encouragement to a person >in pain is not acceptable to me. >donnah > > Specialsearcher, I must say your reply to Rebecca was totally > > insensitive and rude!!! Perhaps in the future if you can’t be > > supportive or compassionate you would do well to just keep quiet!!! > > Sheesh!!! > > Donna G > LOLOLOL Girls, girls now stop that. LOLOLOL or not. > Harv
Thanks for all the replies. I actually got the shot in in time to stop a major flare from coming on. I’m a little stiff but I wised up in time. I’m lucky I can read my body well enough now to stop the bad pain before it starts. I’m also so damn lucky that the Enbrel kicks in so fast and works so well for me. I want to stay healthy and feeling good because our new town has so much to do and enjoy, and I want to be able to do it all. Without the Enbrel, living in Whistler would be hell. This is a town that is all about being physically active, with skiing and snowshoeing in the winter, and boating, biking and hiking in the summer. If you’ve never heard of the place check out www.whistler-blackcomb.com . It is a beautiful place. If Whistler and Vancouver get the 2010 Olympics you’ll be hearing much more about it. The bike trail system here is amazing. I’ve been going out 2-3 days a week towing my 4 year old behind me for an hour and a half ride. Three days a week I’m still doing water aerobics, although all by myself for now. I just got back from a family bike ride today so I really shouldn’t complain about my health since I am so capable. As far as our house goes, Harv, it’s beautiful. It’s a brand new house with hardwoods, stone and marble floors. We have a lot of exposed beams all done with reclaimed wood. Our top floor has a small den, the master suite and an amazing great room with cathedral ceiling and an enormous stone fireplace with views of the lake and mountains. We’ve got more bedrooms, a playroom and a games room on the other two floors. But the piece de resistance for an arthritic is the steam room in the spa which leads out to the hot tub with views all around. That’s how I’m dealing with any flares– my old little slice of heaven. We’re situated on a small lagoon that leads out to a glacier-fed lake, which does get warm enough for swims in the summer. We just bought a secondhand canoe and have been cruising around on it. Main problem is our golden retriever follows us as we go and doesn’t have the stamina to make it very far. Quite funny to see him swim to shore and proceed to run through all the lakefront yards trying to keep up with us! We’re also hoping to pick up an old laser sailboat or two and help get a small racing club going. All in all, I’ve got a damn good life here with two healthy kids and husband who loves me soI should just consider myself very lucky, RA or not. If anything, the disease is giving me a whole new appreciation for all that I’ve got. And living here will make me want to do as much as I can on the good days. So I’ll quite my griping about not being in a non-medicated remission and just enjoy the good things in life! (But thanks for listening. I knew you’d all understand.) — Rebecca Ford – Hide quoted text — Show quoted text -> Why do I do this to myself? I’ve been doing fairly well in general, although > I suspect my thyroid is lacking again. But anyway, the RA has been good, so > good that I skipped an Enbrel dose, figuring it’d help my minor sinus > infection. Skipped two more, hoping that maybe I’m finally in that 10% who > have a real remission. Last shot was a week ago Monday morning. I’ve been > dragging energywise yesterday and today. Now my fingers are swelling and > achy and I’m getting that beginning pinprick of pain in my hips and > shoulders. Looks like an injection for dinner if I don’t want to be > completely incapacitated tomorrow. Damn, damn, damn!!!! I was kind of hoping > that with a new home in a new country, starting a new life I could trick my > body into being well. Sh*t, sh*t, sh*t!!! I’m now officially depressed and > pissed off, both at the disease and myself for getting my hopes up!! > Rebecca Ford > Hi Rebecca, Actually it is very good that you have got this out of the > way. Nearly all of us have at one time or another felt so good that we > thought we could just skip our medicine. Wrong…. I really hope that > your medicine kicks back in again but there is no guaranty that it > will. Our immune system works best with all things remaining constant. > If we are taking our medicine and doing as we should and something > tragic enter our life and our stress levels go way up,,,,a flare could > result. It may not but it could and be understandable. > A move in itself can be very stressful while we do not realize the > stress is taking place and can be happy about it. Please give us an > update on how you are and when you feel like,, tell us all about your > new home. > Harv
(((Rebecca))) Kate’s reply is so true… praying that you feel better soon… donnah
– Hide quoted text — Show quoted text -> i’m sorry you are hurting, both physically and emotionally. (((((hugs)))))) > be gentle with and forgive yourself, rebecca. nobody wants these diseases, > the deterioration and the restructuring of our lives that come with them. > everybody wants to believe and needs to believe we might just get the chance > to return to what should be ”normal” and ”comfortable” and ”familiar”. > it is ok to love yourself enough to want that for yourself, rebecca. > sometimes, it is just too irresistable and very human to test the moment, to > see if that miracle has happened for us and to us. unfortunately, that > miracle doesn’t always happen for everybody. but, maybe that’s because > that particular one isn’t the miracle that was intended for each and every > one of us; and maybe that’s because there is a different kind of miracle > that we aren’t looking for, or hoping for, that IS in store for each of > us—something even more important and valuable to each of us, individually, > that is individualized and specific to each of our lives and that we aren’t > aware of just yet. who knows? wishing you’d feel better soon. > kate > Why do I do this to myself? I’ve been doing fairly well in general, although > I suspect my thyroid is lacking again. But anyway, the RA has been good, so > good that I skipped an Enbrel dose, figuring it’d help my minor sinus > infection. Skipped two more, hoping that maybe I’m finally in that 10% who > have a real remission. Last shot was a week ago Monday morning. I’ve been > dragging energywise yesterday and today. Now my fingers are swelling and > achy and I’m getting that beginning pinprick of pain in my hips and > shoulders. Looks like an injection for dinner if I don’t want to be > completely incapacitated tomorrow. Damn, damn, damn!!!! I was kind of hoping > that with a new home in a new country, starting a new life I could trick my > body into being well. Sh*t, sh*t, sh*t!!! I’m now officially depressed and > pissed off, both at the disease and myself for getting my hopes up!! > Rebecca Ford
Sue E.
– Hide quoted text — Show quoted text -> Why do I do this to myself? I’ve been doing fairly well in general, although > I suspect my thyroid is lacking again. But anyway, the RA has been good, so > good that I skipped an Enbrel dose, figuring it’d help my minor sinus > infection. Skipped two more, hoping that maybe I’m finally in that 10% who > have a real remission. Last shot was a week ago Monday morning. I’ve been > dragging energywise yesterday and today. Now my fingers are swelling and > achy and I’m getting that beginning pinprick of pain in my hips and > shoulders. Looks like an injection for dinner if I don’t want to be > completely incapacitated tomorrow. Damn, damn, damn!!!! I was kind of hoping > that with a new home in a new country, starting a new life I could trick my > body into being well. Sh*t, sh*t, sh*t!!! I’m now officially depressed and > pissed off, both at the disease and myself for getting my hopes up!! > Rebecca Ford
- Hide quoted text — Show quoted text – > Why do I do this to myself? I’ve been doing fairly well in general, although > I suspect my thyroid is lacking again. But anyway, the RA has been good, so > good that I skipped an Enbrel dose, figuring it’d help my minor sinus > infection. Skipped two more, hoping that maybe I’m finally in that 10% who > have a real remission. Last shot was a week ago Monday morning. I’ve been > dragging energywise yesterday and today. Now my fingers are swelling and > achy and I’m getting that beginning pinprick of pain in my hips and > shoulders. Looks like an injection for dinner if I don’t want to be > completely incapacitated tomorrow. Damn, damn, damn!!!! I was kind of hoping > that with a new home in a new country, starting a new life I could trick my > body into being well. Sh*t, sh*t, sh*t!!! I’m now officially depressed and > pissed off, both at the disease and myself for getting my hopes up!! > Rebecca Ford
Hi Rebecca, Actually it is very good that you have got this out of the way. Nearly all of us have at one time or another felt so good that we thought we could just skip our medicine. Wrong…. I really hope that your medicine kicks back in again but there is no guaranty that it will. Our immune system works best with all things remaining constant. If we are taking our medicine and doing as we should and something tragic enter our life and our stress levels go way up,,,,a flare could result. It may not but it could and be understandable. A move in itself can be very stressful while we do not realize the stress is taking place and can be happy about it. Please give us an update on how you are and when you feel like,, tell us all about your new home. Harv
i’m sorry you are hurting, both physically and emotionally. (((((hugs)))))) be gentle with and forgive yourself, rebecca. nobody wants these diseases, the deterioration and the restructuring of our lives that come with them. everybody wants to believe and needs to believe we might just get the chance to return to what should be ”normal” and ”comfortable” and ”familiar”. it is ok to love yourself enough to want that for yourself, rebecca. sometimes, it is just too irresistable and very human to test the moment, to see if that miracle has happened for us and to us. unfortunately, that miracle doesn’t always happen for everybody. but, maybe that’s because that particular one isn’t the miracle that was intended for each and every one of us; and maybe that’s because there is a different kind of miracle that we aren’t looking for, or hoping for, that IS in store for each of us—something even more important and valuable to each of us, individually, that is individualized and specific to each of our lives and that we aren’t aware of just yet. who knows? wishing you’d feel better soon. kate
Why do I do this to myself? I’ve been doing fairly well in general, although I suspect my thyroid is lacking again. But anyway, the RA has been good, so good that I skipped an Enbrel dose, figuring it’d help my minor sinus infection. Skipped two more, hoping that maybe I’m finally in that 10% who have a real remission. Last shot was a week ago Monday morning. I’ve been dragging energywise yesterday and today. Now my fingers are swelling and achy and I’m getting that beginning pinprick of pain in my hips and shoulders. Looks like an injection for dinner if I don’t want to be completely incapacitated tomorrow. Damn, damn, damn!!!! I was kind of hoping that with a new home in a new country, starting a new life I could trick my body into being well. Sh*t, sh*t, sh*t!!! I’m now officially depressed and pissed off, both at the disease and myself for getting my hopes up!! Rebecca Ford
Why do I do this to myself? I’ve been doing fairly well in general, although I suspect my thyroid is lacking again. But anyway, the RA has been good, so good that I skipped an Enbrel dose, figuring it’d help my minor sinus infection. Skipped two more, hoping that maybe I’m finally in that 10% who have a real remission. Last shot was a week ago Monday morning. I’ve been dragging energywise yesterday and today. Now my fingers are swelling and achy and I’m getting that beginning pinprick of pain in my hips and shoulders. Looks like an injection for dinner if I don’t want to be completely incapacitated tomorrow. Damn, damn, damn!!!! I was kind of hoping that with a new home in a new country, starting a new life I could trick my body into being well. Sh*t, sh*t, sh*t!!! I’m now officially depressed and pissed off, both at the disease and myself for getting my hopes up!! Rebecca Ford
Now I suppose you want me NOT to ask why you call him Wayne and his name is Johnnie. I will try. sigh eeeeeeeeeennnnnneeennnnnn quack – Hide quoted text — Show quoted text – > his name is Johnnie but we call him Wayne > — > Cyberhugs, > DianeW
>We played bridge!!!
Bridge? Dont know how to play that game, but I DO own a Cribbage board. Char "Remember, I’m pulling for ya’. We’re all in this together." Red Green
his name is Johnnie but we call him Wayne — Cyberhugs, DianeW It is only with the heart that one can see rightly; what is essential is invisible to the eye. –Antoine de Saint Exup
Sounds gross, but hey, at this point, I’ll try almost anything that works. Anne AAC/AAF/AFBV62.0844.AZ http://www.tckworld.com/opfoot
You can read all about it on: http://www.cabi-publishing.org/Bookshop/ReadingRoom/0851994237/4237-C… PeterB – Hide quoted text — Show quoted text ->Parasite-derived Drug Could Fight Autoimmune Disorders >Betterhumans Staff >[Friday, February 28, 2003] >Getting a parasitic infection is nobody’s >idea of fun, even if it does fight autoimmune disorders. Fortunately, >researchers are working on a drug that mimics the effect of an anti- >inflammatory molecule produced by a common parasite, which could help >relieve such conditions as rheumatoid arthritis. >"This discovery is very exciting and it may help explain an >observation that has puzzled scientists and clinicians for decades: >the reduced incidence of autoimmune disorders in areas of high >nematode worm transmission," says William Harnett of the department >of immunology at the University of Strathclyde, in Glasgow. >"It still seems ironic, however, that a parasitic worm which lives >off humans may also provide a means to relieve suffering for millions >of people," says Harnett. "We hope to produce a derivative of the >worm’s anti-inflammatory molecule and use it as the basis for a drug." >When the immune system goes bad >Autoimmune disorders affect up to 10% of the Western world. They >occur when the immune system attacks the body’s own tissues. >Common autoimmune disorders include rheumatoid arthritis, >inflammatory bowel disease and thyroid disease. >Existing treatments for such conditions are less than ideal, as they >can suppress the body’s immune system and leave people prone to >infection. >"We desperately need new treatments for autoimmune disorders," says >Iain McInnes, professor of experimental medicine at the University of >Glasgow. "Existing treatments, even the newest, most innovative ones, >have limitations. They do not work for everybody and the side effects >can be debilitating in themselves." >Worm secretions >Researchers have found that parasitic worms called filarial nematodes >secrete an anti-inflammatory molecule that causes no obvious side >effects. >The worms infect millions of people in the tropics, where there is a >reduced incidence of autoimmune disorders. >The molecule they secrete, ES-62, allows them to prolong their life >in a host. >Researchers at University of Strathclyde and the University of >Glasgow aim to create a drug that mimics the molecule’s effects and >relieves autoimmune disorders. >They will receive Scottish Enterprise Proof of Concept Fund money to >pursue their work. The fund supports cutting-edge technologies in >Scotland’s academic institutions. >"The prospect of treating painful inflammatory diseases with a drug >that doesn’t completely suppress the patient’s immune system is a >major medical breakthrough," says McInnes.
Parasite-derived Drug Could Fight Autoimmune Disorders Betterhumans Staff [Friday, February 28, 2003] Getting a parasitic infection is nobody’s idea of fun, even if it does fight autoimmune disorders. Fortunately, researchers are working on a drug that mimics the effect of an anti- inflammatory molecule produced by a common parasite, which could help relieve such conditions as rheumatoid arthritis. "This discovery is very exciting and it may help explain an observation that has puzzled scientists and clinicians for decades: the reduced incidence of autoimmune disorders in areas of high nematode worm transmission," says William Harnett of the department of immunology at the University of Strathclyde, in Glasgow. "It still seems ironic, however, that a parasitic worm which lives off humans may also provide a means to relieve suffering for millions of people," says Harnett. "We hope to produce a derivative of the worm’s anti-inflammatory molecule and use it as the basis for a drug." When the immune system goes bad Autoimmune disorders affect up to 10% of the Western world. They occur when the immune system attacks the body’s own tissues. Common autoimmune disorders include rheumatoid arthritis, inflammatory bowel disease and thyroid disease. Existing treatments for such conditions are less than ideal, as they can suppress the body’s immune system and leave people prone to infection. "We desperately need new treatments for autoimmune disorders," says Iain McInnes, professor of experimental medicine at the University of Glasgow. "Existing treatments, even the newest, most innovative ones, have limitations. They do not work for everybody and the side effects can be debilitating in themselves." Worm secretions Researchers have found that parasitic worms called filarial nematodes secrete an anti-inflammatory molecule that causes no obvious side effects. The worms infect millions of people in the tropics, where there is a reduced incidence of autoimmune disorders. The molecule they secrete, ES-62, allows them to prolong their life in a host. Researchers at University of Strathclyde and the University of Glasgow aim to create a drug that mimics the molecule’s effects and relieves autoimmune disorders. They will receive Scottish Enterprise Proof of Concept Fund money to pursue their work. The fund supports cutting-edge technologies in Scotland’s academic institutions. "The prospect of treating painful inflammatory diseases with a drug that doesn’t completely suppress the patient’s immune system is a major medical breakthrough," says McInnes.
thanks for all the loving thoughts re alana. yes, she has been seen by an endocrinologist, as well as a neurologist. the endocrinologist took her off her reglan to see if that might be raising her prolactin level, so of course, her gi symtoms are way bad. i don’t think there are any teaching hospitals near her. i am now in the awkward position of not wanting to badger her too much, because she is starting to resist a bit. and we all know what it’s like to be badgered to "try this/do that." i will proceed with caution. d
(((Diane))) 24/7 will continue…donnah – Hide quoted text — Show quoted text – > thanks for all the loving thoughts re alana. yes, she has been seen by an > endocrinologist, as well as a neurologist. the endocrinologist took her off her > reglan to see if that might be raising her prolactin level, so of course, her > gi symtoms are way bad. i don’t think there are any teaching hospitals near > her. i am now in the awkward position of not wanting to badger her too much, > because she is starting to resist a bit. and we all know what it’s like to be > badgered to "try this/do that." i will proceed with caution. > d
Sometimes diseases will only be classified by the doctor once a set of symptoms reach a certain level. Until then he says "all OK". Truth is the difference between one disease and another, or having a disease and not, is often a blurred boundary of a few symptoms and levels. In the meantime, while you don’t have sufficient evidence to classify a name, the reality is – all is not well. Don’t wait till something is named to take action, and likewise don’t be satisfied that nothing is found or given a name, therefore all is well, for that could be a serious mistake. regards David
– Hide quoted text — Show quoted text -> wow, Diane. thanks for sharing that. i will push harder for her to see a > rheumy, altho she has seen a neuro and the mri showed no lesions. at least not > yet. > and thanks for your prayers, all. > diane >I hate to tell you that’s how my symptoms started out down to the >high prolactin level that to this day has never been explained. They said >sometimes it can happen with the MS lesions in the right place and that’s >all they’ve said. Please encourage her to meet with both a good neuro and a >good rheumy. I will keep her in my thoughts and prayers. >– >Cyberhugs, >DianeW
Sending prayers for Alana…for strength and answers quickly! Hoping your hills are never too steep! Be well, Patty
I haven’t a clue. perhaps someone else will. If not, one suggestion I might make is see if you can get her to see some docs at a teaching hospital if there’s a decent one relatively nearby. Teaching hospitals have many specialties in one places who are accustomed to working with each other and it’s often the place to get to the bottom of a confusing illness. ((((Diane and stepdayghter))) — Nann remove the Gator cheer to email me "To array a man’s will against his sickness is the supreme art of medicine." …Henry Ward Beecher
>i am also >nagging her about getting a referral to a rheumy.
Keep nagging her Diane. She needs to get to the bottom of this, and a RD is the next logical step. (Or so it seems to me.) She may not be a child of your body, but she is obviously a child of your heart. I sure hope she gets some answers soon. Prayers coming her way. (You going to be able to make it to Iowa in July? Maybe? Maybe?) Char "Remember, I’m pulling for ya’. We’re all in this together." Red Green
Diane, we started a 24/7 prayer vigil for Alana..donnah – Hide quoted text — Show quoted text – > hi guys, > my son in law got my computer back in working order. hooray! but his wife, my > stepdaughter, is really worrying me. i swear, it’s as though she and i are > blood relatives. she has always reminded me of myself and now she is getting > symptoms that, IMO, point to an autoimmune disease, although there are none in > her family. please let me tap your collective wisdom to see if you have any > ideas what’s going on with her. > she is 28, an architect, who has had GI problems and UTI’s since she was a kid, > and off and on headaches for years. her headaches have changed in quality and > are pretty constant now. her blood work has all been normal except for an > elevated prolactin level. (normal is under 29, hers is 277). a pituitary tumor > was suspected, but has been ruled out (at least a large one has been ruled out) > by mri. most troubling is that she is now starting to ache all over, more > muscular than joint. her GP thinks it’s fibromyalgia, although that doesn’t > explain the prolactin issue. she is also battling nearly daily nausea now. she > also has what might be "fibro-fog" and is starting to have some trouble with > memory and stringing sentences together, although this would probably not be > noticeable to someone who doesn’t know her. it’s so hard to watch her going > down hill, as those of you with sick kids know. she lives a few hours from me, > so i only get to see her every month or so and the deterioration is marked. we > communicate a lot by phone and email, tho, because i can relate so well to the > "what the hell is happening to me?" feeling she’s enduring. > please send prayers and good vibes in Alana’s direction. i’ve encouraged her to > get on the fibro support group, but she is not interested in that. i am also > nagging her about getting a referral to a rheumy. > diane, worried.
guess we are thinking along the same lines, Ari…you beat me to it..but it was my first reaction when I read Diane’s post…so many people scoff at the thyroid as being important including docs…donnah – Hide quoted text — Show quoted text – > I skimmed this post, so forgive me if you mentioned this, but why the > hell hasn’t she been to see an endocrinologist?????? > hi guys, > my son in law got my computer back in working order. hooray! but his wife, my > stepdaughter, is really worrying me. i swear, it’s as though she and i are > blood relatives. she has always reminded me of myself and now she is getting > symptoms that, IMO, point to an autoimmune disease, although there are none in > her family. please let me tap your collective wisdom to see if you have any > ideas what’s going on with her. > she is 28, an architect, who has had GI problems and UTI’s since she was a kid, > and off and on headaches for years. her headaches have changed in quality and > are pretty constant now. her blood work has all been normal except for an > elevated prolactin level. (normal is under 29, hers is 277). a pituitary tumor > was suspected, but has been ruled out (at least a large one has been ruled out) > by mri. most troubling is that she is now starting to ache all over, more > muscular than joint. her GP thinks it’s fibromyalgia, although that doesn’t > explain the prolactin issue. she is also battling nearly daily nausea now. she > also has what might be "fibro-fog" and is starting to have some trouble with > memory and stringing sentences together, although this would probably not be > noticeable to someone who doesn’t know her. it’s so hard to watch her going > down hill, as those of you with sick kids know. she lives a few hours from me, > so i only get to see her every month or so and the deterioration is marked. we > communicate a lot by phone and email, tho, because i can relate so well to the > "what the hell is happening to me?" feeling she’s enduring. > please send prayers and good vibes in Alana’s direction. i’ve encouraged her to > get on the fibro support group, but she is not interested in that. i am also > nagging her about getting a referral to a rheumy. > diane, worried. > — > Are you registered as a bone marrow donor? You regenerate what you > donate. You are offered the chance to donate only if you match a person > on the recipient list. Call your local Red Cross and ask about > registering to be a bone marrow donor. > spam trap: replace shyah_right with hotmail when replying
wow, Diane. thanks for sharing that. i will push harder for her to see a rheumy, altho she has seen a neuro and the mri showed no lesions. at least not yet. and thanks for your prayers, all. diane – Hide quoted text — Show quoted text ->I hate to tell you that’s how my symptoms started out down to the >high prolactin level that to this day has never been explained. They said >sometimes it can happen with the MS lesions in the right place and that’s >all they’ve said. Please encourage her to meet with both a good neuro and a >good rheumy. I will keep her in my thoughts and prayers. >– >Cyberhugs, >DianeW
Diane, how was her thyroid level checked? Was it just part of a regular CBC…if so, she needs to see an endrocrinologist and do the whole blood work they specifically run…donnah – Hide quoted text — Show quoted text – > thanks for that info, alex. no, she’s not pregnant. and her thyroid’s been > checked, but i will pass that info onto her anyway. interesting. > diane >Says that a Prolactin of 10 to 300 ng/ml may be a sign of pregnancy. >Is there a chance? >It also says that it could be an indicator of Hypothyroidism which is >often misdiagnosed as FMS because some of the symptoms are similar. >http://www.nlm.nih.gov/medlineplus/ency/article/000353.htm >Sending Good thoughts, >{{{{Alana}}}} >GramPaHugs, >Alex,
thanks for that info, alex. no, she’s not pregnant. and her thyroid’s been checked, but i will pass that info onto her anyway. interesting. diane – Hide quoted text — Show quoted text ->Says that a Prolactin of 10 to 300 ng/ml may be a sign of pregnancy. >Is there a chance? >It also says that it could be an indicator of Hypothyroidism which is >often misdiagnosed as FMS because some of the symptoms are similar. >http://www.nlm.nih.gov/medlineplus/ency/article/000353.htm >Sending Good thoughts, >{{{{Alana}}}} >GramPaHugs, >Alex,
Prayers are being said for you both. Duckie – Hide quoted text — Show quoted text – > hi guys, > my son in law got my computer back in working order. hooray! but his wife, my > stepdaughter, is really worrying me. i swear, it’s as though she and i are > blood relatives. she has always reminded me of myself and now she is getting > symptoms that, IMO, point to an autoimmune disease, although there are none in > her family. please let me tap your collective wisdom to see if you have any > ideas what’s going on with her. > she is 28, an architect, who has had GI problems and UTI’s since she was a kid, > and off and on headaches for years. her headaches have changed in quality and > are pretty constant now. her blood work has all been normal except for an > elevated prolactin level. (normal is under 29, hers is 277). a pituitary tumor > was suspected, but has been ruled out (at least a large one has been ruled out) > by mri. most troubling is that she is now starting to ache all over, more > muscular than joint. her GP thinks it’s fibromyalgia, although that doesn’t > explain the prolactin issue. she is also battling nearly daily nausea now. she > also has what might be "fibro-fog" and is starting to have some trouble with > memory and stringing sentences together, although this would probably not be > noticeable to someone who doesn’t know her. it’s so hard to watch her going > down hill, as those of you with sick kids know. she lives a few hours from me, > so i only get to see her every month or so and the deterioration is marked. we > communicate a lot by phone and email, tho, because i can relate so well to the > "what the hell is happening to me?" feeling she’s enduring. > please send prayers and good vibes in Alana’s direction. i’ve encouraged her to > get on the fibro support group, but she is not interested in that. i am also > nagging her about getting a referral to a rheumy. > diane, worried.
I skimmed this post, so forgive me if you mentioned this, but why the hell hasn’t she been to see an endocrinologist?????? – Hide quoted text — Show quoted text – > hi guys, > my son in law got my computer back in working order. hooray! but his wife, my > stepdaughter, is really worrying me. i swear, it’s as though she and i are > blood relatives. she has always reminded me of myself and now she is getting > symptoms that, IMO, point to an autoimmune disease, although there are none in > her family. please let me tap your collective wisdom to see if you have any > ideas what’s going on with her. > she is 28, an architect, who has had GI problems and UTI’s since she was a kid, > and off and on headaches for years. her headaches have changed in quality and > are pretty constant now. her blood work has all been normal except for an > elevated prolactin level. (normal is under 29, hers is 277). a pituitary tumor > was suspected, but has been ruled out (at least a large one has been ruled out) > by mri. most troubling is that she is now starting to ache all over, more > muscular than joint. her GP thinks it’s fibromyalgia, although that doesn’t > explain the prolactin issue. she is also battling nearly daily nausea now. she > also has what might be "fibro-fog" and is starting to have some trouble with > memory and stringing sentences together, although this would probably not be > noticeable to someone who doesn’t know her. it’s so hard to watch her going > down hill, as those of you with sick kids know. she lives a few hours from me, > so i only get to see her every month or so and the deterioration is marked. we > communicate a lot by phone and email, tho, because i can relate so well to the > "what the hell is happening to me?" feeling she’s enduring. > please send prayers and good vibes in Alana’s direction. i’ve encouraged her to > get on the fibro support group, but she is not interested in that. i am also > nagging her about getting a referral to a rheumy. > diane, worried.
– Are you registered as a bone marrow donor? You regenerate what you donate. You are offered the chance to donate only if you match a person on the recipient list. Call your local Red Cross and ask about registering to be a bone marrow donor. spam trap: replace shyah_right with hotmail when replying
Of course Alana is now on my prayer list. Please don’t let the stress of worrying about her cause you to flare. Gwen
Hi Diane, http://www.nlm.nih.gov/medlineplus/ency/article/003718.htm Says that a Prolactin of 10 to 300 ng/ml may be a sign of pregnancy. Is there a chance? It also says that it could be an indicator of Hypothyroidism which is often misdiagnosed as FMS because some of the symptoms are similar. http://www.nlm.nih.gov/medlineplus/ency/article/000353.htm Sending Good thoughts, {{{{Alana}}}} GramPaHugs, Alex, – Hide quoted text — Show quoted text – > hi guys, > my son in law got my computer back in working order. hooray! but his wife, my > stepdaughter, is really worrying me. i swear, it’s as though she and i are > blood relatives. she has always reminded me of myself and now she is getting > symptoms that, IMO, point to an autoimmune disease, although there are none in > her family. please let me tap your collective wisdom to see if you have any > ideas what’s going on with her. > she is 28, an architect, who has had GI problems and UTI’s since she was a kid, > and off and on headaches for years. her headaches have changed in quality and > are pretty constant now. her blood work has all been normal except for an > elevated prolactin level. (normal is under 29, hers is 277). a pituitary tumor > was suspected, but has been ruled out (at least a large one has been ruled out) > by mri. most troubling is that she is now starting to ache all over, more > muscular than joint. her GP thinks it’s fibromyalgia, although that doesn’t > explain the prolactin issue. she is also battling nearly daily nausea now. she > also has what might be "fibro-fog" and is starting to have some trouble with > memory and stringing sentences together, although this would probably not be > noticeable to someone who doesn’t know her. it’s so hard to watch her going > down hill, as those of you with sick kids know. she lives a few hours from me, > so i only get to see her every month or so and the deterioration is marked. we > communicate a lot by phone and email, tho, because i can relate so well to the > "what the hell is happening to me?" feeling she’s enduring. > please send prayers and good vibes in Alana’s direction. i’ve encouraged her to > get on the fibro support group, but she is not interested in that. i am also > nagging her about getting a referral to a rheumy. > diane, worried.
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(((((((((((((((((((((diane)))))))))))))))))) how scary. i’ve just put alana on my list. kate
hi guys, my son in law got my computer back in working order. hooray! but his wife, my stepdaughter, is really worrying me. i swear, it’s as though she and i are blood relatives. she has always reminded me of myself and now she is getting symptoms that, IMO, point to an autoimmune disease, although there are none in her family. please let me tap your collective wisdom to see if you have any ideas what’s going on with her. she is 28, an architect, who has had GI problems and UTI’s since she was a kid, and off and on headaches for years. her headaches have changed in quality and are pretty constant now. her blood work has all been normal except for an elevated prolactin level. (normal is under 29, hers is 277). a pituitary tumor was suspected, but has been ruled out (at least a large one has been ruled out) by mri. most troubling is that she is now starting to ache all over, more muscular than joint. her GP thinks it’s fibromyalgia, although that doesn’t explain the prolactin issue. she is also battling nearly daily nausea now. she also has what might be "fibro-fog" and is starting to have some trouble with memory and stringing sentences together, although this would probably not be noticeable to someone who doesn’t know her. it’s so hard to watch her going down hill, as those of you with sick kids know. she lives a few hours from me, so i only get to see her every month or so and the deterioration is marked. we communicate a lot by phone and email, tho, because i can relate so well to the "what the hell is happening to me?" feeling she’s enduring. please send prayers and good vibes in Alana’s direction. i’ve encouraged her to get on the fibro support group, but she is not interested in that. i am also nagging her about getting a referral to a rheumy. diane, worried.
No advice, sweetie, but Alana will definitely be added to our prayer list. I worry about my two kids as well. Rob has often exhibited clear signs of FMS, but as a 23-year old guy, there’s no way he’ll admit it until he has to. Anyway, both you and Alana will be prayed over regularly. We love you! DeeTee DeeTee and Bob Taggart http://home.earthlink.net/~bdtaggart/
– Hide quoted text — Show quoted text -> hi guys, > my son in law got my computer back in working order. hooray! but his wife, my > stepdaughter, is really worrying me. i swear, it’s as though she and i are > blood relatives. she has always reminded me of myself and now she is getting > symptoms that, IMO, point to an autoimmune disease, although there are none in > her family. please let me tap your collective wisdom to see if you have any > ideas what’s going on with her. > she is 28, an architect, who has had GI problems and UTI’s since she was a kid, > and off and on headaches for years. her headaches have changed in quality and > are pretty constant now. her blood work has all been normal except for an > elevated prolactin level. (normal is under 29, hers is 277). a pituitary tumor > was suspected, but has been ruled out (at least a large one has been ruled out) > by mri. most troubling is that she is now starting to ache all over, more > muscular than joint. her GP thinks it’s fibromyalgia, although that doesn’t > explain the prolactin issue. she is also battling nearly daily nausea now. she > also has what might be "fibro-fog" and is starting to have some trouble with > memory and stringing sentences together, although this would probably not be > noticeable to someone who doesn’t know her. it’s so hard to watch her going > down hill, as those of you with sick kids know. she lives a few hours from me, > so i only get to see her every month or so and the deterioration is marked. we > communicate a lot by phone and email, tho, because i can relate so well to the > "what the hell is happening to me?" feeling she’s enduring. > please send prayers and good vibes in Alana’s direction. i’ve encouraged her to > get on the fibro support group, but she is not interested in that. i am also > nagging her about getting a referral to a rheumy. > diane, worried.
Diane – I hate to tell you that’s how my symptoms started out down to the high prolactin level that to this day has never been explained. They said sometimes it can happen with the MS lesions in the right place and that’s all they’ve said. Please encourage her to meet with both a good neuro and a good rheumy. I will keep her in my thoughts and prayers. — Cyberhugs, DianeW
– Hide quoted text — Show quoted text -> hi guys, > my son in law got my computer back in working order. hooray! but his wife, my > stepdaughter, is really worrying me. i swear, it’s as though she and i are > blood relatives. she has always reminded me of myself and now she is getting > symptoms that, IMO, point to an autoimmune disease, although there are none in > her family. please let me tap your collective wisdom to see if you have any > ideas what’s going on with her. > she is 28, an architect, who has had GI problems and UTI’s since she was a kid, > and off and on headaches for years. her headaches have changed in quality and > are pretty constant now. her blood work has all been normal except for an > elevated prolactin level. (normal is under 29, hers is 277). a pituitary tumor > was suspected, but has been ruled out (at least a large one has been ruled out) > by mri. most troubling is that she is now starting to ache all over, more > muscular than joint. her GP thinks it’s fibromyalgia, although that doesn’t > explain the prolactin issue. she is also battling nearly daily nausea now. she > also has what might be "fibro-fog" and is starting to have some trouble with > memory and stringing sentences together, although this would probably not be > noticeable to someone who doesn’t know her. it’s so hard to watch her going > down hill, as those of you with sick kids know. she lives a few hours from me, > so i only get to see her every month or so and the deterioration is marked. we > communicate a lot by phone and email, tho, because i can relate so well to the > "what the hell is happening to me?" feeling she’s enduring. > please send prayers and good vibes in Alana’s direction. i’ve encouraged her to > get on the fibro support group, but she is not interested in that. i am also > nagging her about getting a referral to a rheumy. > diane, worried.
Of course prayers and hugs You may want to stress to her that a good RD may well figure out the root of her problem, even if it isn’t arthritis. They are less likely that another doctor to just roll their eyes when a female patient complains "I just ache all over." Only a fraction of autoimmune disease is clearly genetic. It might well run in her family but others haven’t had the same triggers she may have had. I’ve seen explanations that autoimmune problems are not so much from an overactive immune system as from an overstimulated one. And that infection, etc can cause that kind of damage to an otherwise normal immune system. — Jo Firey "Life is not measured by the number of breaths we take, but by the moments that take our breath away."
> hi guys, > my son in law got my computer back in working order. hooray! but his wife, my > stepdaughter, is really worrying me. i swear, it’s as though she and i are > blood relatives. she has always reminded me of myself and now she is getting > symptoms that, IMO, point to an autoimmune disease, although there are none in > her family. please let me tap your collective wisdom to see if you have any > ideas what’s going on with her. > she is 28, an architect, who has had GI problems and UTI’s
since she was a kid, – Hide quoted text — Show quoted text -> and off and on headaches for years. her headaches have changed in quality and > are pretty constant now. her blood work has all been normal except for an > elevated prolactin level. (normal is under 29, hers is 277). a pituitary tumor > was suspected, but has been ruled out (at least a large one has been ruled out) > by mri. most troubling is that she is now starting to ache all over, more > muscular than joint. her GP thinks it’s fibromyalgia, although that doesn’t > explain the prolactin issue. she is also battling nearly daily nausea now. she > also has what might be "fibro-fog" and is starting to have some trouble with > memory and stringing sentences together, although this would probably not be > noticeable to someone who doesn’t know her. it’s so hard to watch her going > down hill, as those of you with sick kids know. she lives a few hours from me, > so i only get to see her every month or so and the
deterioration is marked. we > communicate a lot by phone and email, tho, because i can
relate so well to the – Hide quoted text — Show quoted text -> "what the hell is happening to me?" feeling she’s enduring. > please send prayers and good vibes in Alana’s direction. i’ve encouraged her to > get on the fibro support group, but she is not interested in that. i am also > nagging her about getting a referral to a rheumy. > diane, worried.
hi guys, my son in law got my computer back in working order. hooray! but his wife, my stepdaughter, is really worrying me. i swear, it’s as though she and i are blood relatives. she has always reminded me of myself and now she is getting symptoms that, IMO, point to an autoimmune disease, although there are none in her family. please let me tap your collective wisdom to see if you have any ideas what’s going on with her. she is 28, an architect, who has had GI problems and UTI’s since she was a kid, and off and on headaches for years. her headaches have changed in quality and are pretty constant now. her blood work has all been normal except for an elevated prolactin level. (normal is under 29, hers is 277). a pituitary tumor was suspected, but has been ruled out (at least a large one has been ruled out) by mri. most troubling is that she is now starting to ache all over, more muscular than joint. her GP thinks it’s fibromyalgia, although that doesn’t explain the prolactin issue. she is also battling nearly daily nausea now. she also has what might be "fibro-fog" and is starting to have some trouble with memory and stringing sentences together, although this would probably not be noticeable to someone who doesn’t know her. it’s so hard to watch her going down hill, as those of you with sick kids know. she lives a few hours from me, so i only get to see her every month or so and the deterioration is marked. we communicate a lot by phone and email, tho, because i can relate so well to the "what the hell is happening to me?" feeling she’s enduring. please send prayers and good vibes in Alana’s direction. i’ve encouraged her to get on the fibro support group, but she is not interested in that. i am also nagging her about getting a referral to a rheumy. diane, worried.
How does a dr determine if "fibro" is going on from a blood work? There is no such test. Nicole . Thank you VERY much – Hide quoted text — Show quoted text -> for all of the opinions. He also had blood drawn to test T3, T4 > Thyroid to verify there is no "fibro" going on.
Nicole, It sounds like I was mistaken. I THOUGHT that was how he tested (by doing detailed thyroid testing). I have no idea then, maybe that’s one of the things the Infectious Disease doc will look for today. I’m SO clueless about this stuff. Sorry for the goof. – Hide quoted text — Show quoted text – > How does a dr determine if "fibro" is going on from a blood work? There is > no such test. > Nicole > . Thank you VERY much > for all of the opinions. He also had blood drawn to test T3, T4 > Thyroid to verify there is no "fibro" going on.
I went to the doctor today, he didn’t say much about the rash but I also told him my newest symptom which is a HORRIBLE pain in my left arm and 2 outer fingers of my left hand. Unbelievably, my skin even hurts. I’ve been hugging my arm against me for the past 48 hours, it really bites. He tested my nerves with pricking and come to find out the areas are a little numb. He said that these nerves are controlled by C5, which is where my surgery site was. He took me into his office and called in some favors with some doctor friends he knows. He’s sending me to an Infectious Disease Doctor tomorrow AND a Nuerologist on Monday. Guess he thinks it’s worth looking into. He wants them to test me for discitis. I told him about this google post and he was very receptive to what you all have suggested. Thank you VERY much for all of the opinions. He also had blood drawn to test T3, T4 Thyroid to verify there is no "fibro" going on. Oh and he gave me some Vicadan and Celebrex for the pain in my arm/hand… nice doctor. I really feel like he cares about his patients. Martin, I hope things went as well for you at your doctors visit today. Hopefully I’ll have some answers soon. – Hide quoted text — Show quoted text -> Nanc: > Here are some links. > http://www.back.com/causes-inflammatory.html (inflammatory conditions of > spine) > http://www.spine.org/articles/postprocedural_discitis.cfm (specific to > discitis) > Please let us know how it goes with your doc. I see my phys med doc > tomorrow for pain (it is really bad now, he’s going to either increase > oxycontin from 40mg twice daily or change to duragesic), plus we’ll figure > out what to do. I’ll post how it went. > I hope that all goes well for you. This sure isn’t fun…. > Martin > Martin, > Thank you SO much for posting. And the rest of you too. I feel > better knowing that I’m not the only one with stuff like this > happening. I have an appointment tomorrow for my primary care > physician to see my rash. He’s also going to refer me to an > Infectious Disease Specialist. If they can’t find anything then he > wants me to see a rhuemetologist. He finally was able to talk to my > surgeon yesterday. My surgeon says that he’s certain that my symptoms > are unrelated to my surgery. I just KNOW it’s got to be related > though. > I’m going to print out this posting and bring it to my doctor with me. > Maybe it’ll help. > > You’re not alone. I had a discectomy in August on L4/L5. A few weeks > > later, I got a life threatening infection. The neurosurgeon put me on > IV > > antibiotics and did a "scrub my guts out" surgery on my back. I then > did 1 > > month oral antibiotics. The surgeon (without any blood tests or further > > images) pronounced me better. I was in horrific pain and when I moved > at > > all, I could feel my lower back moving. (very unsettling feeling). > > Since the neurosurgeon pronounced me better, I said f*** him and went > back > > to a physical medicine specialist. He was royally pissed that the > > neurosurgeon would discharge me in such horrible shape. He did the > blood > > tests you are talking about (SED rate, C-Reactive Protein, and CBC – the > > first two test for chemicals in the blood from lots of inflammation, the > > latter for high white blood cells). They were normal, but an MRI showed > > that the ongoing infection in the disc (discitis) had eaten away the > > majority of what remained on L4/L5 and part of the bone. I am in > horrible > > pain (I see the Phys Med doctor tomorrow – he called me on monday with > the > > findings of the MRI) and he’s going to switch me from Oxycontin to > > Duragesic. Like your case, the neurosurgeon is blowing him off. > > I recommend that you do what I am doing. First, work with your primary > care > > doctor and get a neurosurgeon who will look further for infection, or, > an > > infectious disease specialist. Then, contact an attorney. I am suing > my > > neurosurgeon for malpractice. I went to him with all of the early > > indications of discitis and he was too busy to consider the > possibilities. > > The infection has now destroyed part of my vertabrae and the remaining > part > > of my disc. > > I’m sorry to hear of your suffering and illness. I’ve been there and am > > there. It sure isn’t fun. > > Sorry to ramble > > Martin > > > I’ll try not to be too long winded, but I need some help. I’m a 33 > > > year female, in relatively good health. I feel like I’m going nuts! > > > My legs ache something awful and no one knows why. I’ve found old > > > postings of people with similar reactions but can’t contact any of > > > them (I tried). I hope someone out there can help me. > > > In October of this year I had (excuse the spelling please, this is not > > > my area of expertise!) Anterior Disc Replacement surgery at C5-7. > > > They removed my disc and replaced it with a piece of my hip bone and > > > covered this area with a titanium plate. I recovered very well from > > > the surgery. I returned to work after 2 1/2 weeks and was just taking > > > 600mg Ibuprophen. > > > For the past month and a half (basically since I stopped all meds and > > > went back to work), I have been having flu-like symptoms. I have a > > > slight fever, major aching joints and muscles… primarily in my hands > > > and legs and lots of headaches. I feel like I have a raging fever but > > > it’s only like 100.8. I called my surgeon, (he’s released me), and he > > > said that since its both legs, it can’t have anything to do with my > > > surgery and for me to call my regular doctor. > > > My regular doctor took blood and it all came back normal. With the > > > exception of something he called a Sig rate??? or something like > > > that.. he said it was elevated which indicated internal inflammation. > > > He ordered a CT scan of my surgery site and it came back with a > > > POSSIBLE fracture behind the plate. He called my surgeon to get his > > > advice but he won’t return my regular doctors phone calls. My doctor > > > feels that perhaps I’m allergic to the titanium plate and is getting > > > ready to refer me to a rhuemetologist or an internal medicine doctor. > > > Noting else has been mentioned about the possible fracture. It could > > > have been a streak from the plate of a slight movement on my part. > > > My latest symptom (my doctor hasn’t seen yet) is that I’ve developed a > > > rash on my chest. Skin is kind of splotchy, with no itching. > > > Anyone have any ideas? Please post or email me!!!!
Martin, Thank you SO much for posting. And the rest of you too. I feel better knowing that I’m not the only one with stuff like this happening. I have an appointment tomorrow for my primary care physician to see my rash. He’s also going to refer me to an Infectious Disease Specialist. If they can’t find anything then he wants me to see a rhuemetologist. He finally was able to talk to my surgeon yesterday. My surgeon says that he’s certain that my symptoms are unrelated to my surgery. I just KNOW it’s got to be related though. I’m going to print out this posting and bring it to my doctor with me. Maybe it’ll help. – Hide quoted text — Show quoted text -> You’re not alone. I had a discectomy in August on L4/L5. A few weeks > later, I got a life threatening infection. The neurosurgeon put me on IV > antibiotics and did a "scrub my guts out" surgery on my back. I then did 1 > month oral antibiotics. The surgeon (without any blood tests or further > images) pronounced me better. I was in horrific pain and when I moved at > all, I could feel my lower back moving. (very unsettling feeling). > Since the neurosurgeon pronounced me better, I said f*** him and went back > to a physical medicine specialist. He was royally pissed that the > neurosurgeon would discharge me in such horrible shape. He did the blood > tests you are talking about (SED rate, C-Reactive Protein, and CBC – the > first two test for chemicals in the blood from lots of inflammation, the > latter for high white blood cells). They were normal, but an MRI showed > that the ongoing infection in the disc (discitis) had eaten away the > majority of what remained on L4/L5 and part of the bone. I am in horrible > pain (I see the Phys Med doctor tomorrow – he called me on monday with the > findings of the MRI) and he’s going to switch me from Oxycontin to > Duragesic. Like your case, the neurosurgeon is blowing him off. > I recommend that you do what I am doing. First, work with your primary care > doctor and get a neurosurgeon who will look further for infection, or, an > infectious disease specialist. Then, contact an attorney. I am suing my > neurosurgeon for malpractice. I went to him with all of the early > indications of discitis and he was too busy to consider the possibilities. > The infection has now destroyed part of my vertabrae and the remaining part > of my disc. > I’m sorry to hear of your suffering and illness. I’ve been there and am > there. It sure isn’t fun. > Sorry to ramble > Martin > I’ll try not to be too long winded, but I need some help. I’m a 33 > year female, in relatively good health. I feel like I’m going nuts! > My legs ache something awful and no one knows why. I’ve found old > postings of people with similar reactions but can’t contact any of > them (I tried). I hope someone out there can help me. > In October of this year I had (excuse the spelling please, this is not > my area of expertise!) Anterior Disc Replacement surgery at C5-7. > They removed my disc and replaced it with a piece of my hip bone and > covered this area with a titanium plate. I recovered very well from > the surgery. I returned to work after 2 1/2 weeks and was just taking > 600mg Ibuprophen. > For the past month and a half (basically since I stopped all meds and > went back to work), I have been having flu-like symptoms. I have a > slight fever, major aching joints and muscles… primarily in my hands > and legs and lots of headaches. I feel like I have a raging fever but > it’s only like 100.8. I called my surgeon, (he’s released me), and he > said that since its both legs, it can’t have anything to do with my > surgery and for me to call my regular doctor. > My regular doctor took blood and it all came back normal. With the > exception of something he called a Sig rate??? or something like > that.. he said it was elevated which indicated internal inflammation. > He ordered a CT scan of my surgery site and it came back with a > POSSIBLE fracture behind the plate. He called my surgeon to get his > advice but he won’t return my regular doctors phone calls. My doctor > feels that perhaps I’m allergic to the titanium plate and is getting > ready to refer me to a rhuemetologist or an internal medicine doctor. > Noting else has been mentioned about the possible fracture. It could > have been a streak from the plate of a slight movement on my part. > My latest symptom (my doctor hasn’t seen yet) is that I’ve developed a > rash on my chest. Skin is kind of splotchy, with no itching. > Anyone have any ideas? Please post or email me!!!!
Nanc: Here are some links. http://www.back.com/causes-inflammatory.html (inflammatory conditions of spine) http://www.spine.org/articles/postprocedural_discitis.cfm (specific to discitis) Please let us know how it goes with your doc. I see my phys med doc tomorrow for pain (it is really bad now, he’s going to either increase oxycontin from 40mg twice daily or change to duragesic), plus we’ll figure out what to do. I’ll post how it went. I hope that all goes well for you. This sure isn’t fun…. Martin
– Hide quoted text — Show quoted text -> Martin, > Thank you SO much for posting. And the rest of you too. I feel > better knowing that I’m not the only one with stuff like this > happening. I have an appointment tomorrow for my primary care > physician to see my rash. He’s also going to refer me to an > Infectious Disease Specialist. If they can’t find anything then he > wants me to see a rhuemetologist. He finally was able to talk to my > surgeon yesterday. My surgeon says that he’s certain that my symptoms > are unrelated to my surgery. I just KNOW it’s got to be related > though. > I’m going to print out this posting and bring it to my doctor with me. > Maybe it’ll help.
– Hide quoted text — Show quoted text -> You’re not alone. I had a discectomy in August on L4/L5. A few weeks > later, I got a life threatening infection. The neurosurgeon put me on IV > antibiotics and did a "scrub my guts out" surgery on my back. I then did 1 > month oral antibiotics. The surgeon (without any blood tests or further > images) pronounced me better. I was in horrific pain and when I moved at > all, I could feel my lower back moving. (very unsettling feeling). > Since the neurosurgeon pronounced me better, I said f*** him and went back > to a physical medicine specialist. He was royally pissed that the > neurosurgeon would discharge me in such horrible shape. He did the blood > tests you are talking about (SED rate, C-Reactive Protein, and CBC – the > first two test for chemicals in the blood from lots of inflammation, the > latter for high white blood cells). They were normal, but an MRI showed > that the ongoing infection in the disc (discitis) had eaten away the > majority of what remained on L4/L5 and part of the bone. I am in horrible > pain (I see the Phys Med doctor tomorrow – he called me on monday with the > findings of the MRI) and he’s going to switch me from Oxycontin to > Duragesic. Like your case, the neurosurgeon is blowing him off. > I recommend that you do what I am doing. First, work with your primary care > doctor and get a neurosurgeon who will look further for infection, or, an > infectious disease specialist. Then, contact an attorney. I am suing my > neurosurgeon for malpractice. I went to him with all of the early > indications of discitis and he was too busy to consider the possibilities. > The infection has now destroyed part of my vertabrae and the remaining part > of my disc. > I’m sorry to hear of your suffering and illness. I’ve been there and am > there. It sure isn’t fun. > Sorry to ramble > Martin > > I’ll try not to be too long winded, but I need some help. I’m a 33 > > year female, in relatively good health. I feel like I’m going nuts! > > My legs ache something awful and no one knows why. I’ve found old > > postings of people with similar reactions but can’t contact any of > > them (I tried). I hope someone out there can help me. > > In October of this year I had (excuse the spelling please, this is not > > my area of expertise!) Anterior Disc Replacement surgery at C5-7. > > They removed my disc and replaced it with a piece of my hip bone and > > covered this area with a titanium plate. I recovered very well from > > the surgery. I returned to work after 2 1/2 weeks and was just taking > > 600mg Ibuprophen. > > For the past month and a half (basically since I stopped all meds and > > went back to work), I have been having flu-like symptoms. I have a > > slight fever, major aching joints and muscles… primarily in my hands > > and legs and lots of headaches. I feel like I have a raging fever but > > it’s only like 100.8. I called my surgeon, (he’s released me), and he > > said that since its both legs, it can’t have anything to do with my > > surgery and for me to call my regular doctor. > > My regular doctor took blood and it all came back normal. With the > > exception of something he called a Sig rate??? or something like > > that.. he said it was elevated which indicated internal inflammation. > > He ordered a CT scan of my surgery site and it came back with a > > POSSIBLE fracture behind the plate. He called my surgeon to get his > > advice but he won’t return my regular doctors phone calls. My doctor > > feels that perhaps I’m allergic to the titanium plate and is getting > > ready to refer me to a rhuemetologist or an internal medicine doctor. > > Noting else has been mentioned about the possible fracture. It could > > have been a streak from the plate of a slight movement on my part. > > My latest symptom (my doctor hasn’t seen yet) is that I’ve developed a > > rash on my chest. Skin is kind of splotchy, with no itching. > > Anyone have any ideas? Please post or email me!!!!
There’s a post here about discitis… I realise your disk was taken out, but I wonder if there’s some kind of infection in the area of the bone that they say might be fractured? It sounds like your surgeon was fobbing you off, *and* your doc! Very irresponsible. I don’t like the sound of the rash – maybe you should ring your regular doc and let him know about it, it might give him a clue as to what’s going on. Maybe it’s got nothing to do with the surgery, so keep that in mind in case the doc doesn’t consider other reasons! — Katharine S. The more you share the more you have. – Hide quoted text — Show quoted text – > I’ll try not to be too long winded, but I need some help. I’m a 33 > year female, in relatively good health. I feel like I’m going nuts! > My legs ache something awful and no one knows why. I’ve found old > postings of people with similar reactions but can’t contact any of > them (I tried). I hope someone out there can help me. > In October of this year I had (excuse the spelling please, this is not > my area of expertise!) Anterior Disc Replacement surgery at C5-7. > They removed my disc and replaced it with a piece of my hip bone and > covered this area with a titanium plate. I recovered very well from > the surgery. I returned to work after 2 1/2 weeks and was just taking > 600mg Ibuprophen. > For the past month and a half (basically since I stopped all meds and > went back to work), I have been having flu-like symptoms. I have a > slight fever, major aching joints and muscles… primarily in my hands > and legs and lots of headaches. I feel like I have a raging fever but > it’s only like 100.8. I called my surgeon, (he’s released me), and he > said that since its both legs, it can’t have anything to do with my > surgery and for me to call my regular doctor. > My regular doctor took blood and it all came back normal. With the > exception of something he called a Sig rate??? or something like > that.. he said it was elevated which indicated internal inflammation. > He ordered a CT scan of my surgery site and it came back with a > POSSIBLE fracture behind the plate. He called my surgeon to get his > advice but he won’t return my regular doctors phone calls. My doctor > feels that perhaps I’m allergic to the titanium plate and is getting > ready to refer me to a rhuemetologist or an internal medicine doctor. > Noting else has been mentioned about the possible fracture. It could > have been a streak from the plate of a slight movement on my part. > My latest symptom (my doctor hasn’t seen yet) is that I’ve developed a > rash on my chest. Skin is kind of splotchy, with no itching. > Anyone have any ideas? Please post or email me!!!!
You’re not alone. I had a discectomy in August on L4/L5. A few weeks later, I got a life threatening infection. The neurosurgeon put me on IV antibiotics and did a "scrub my guts out" surgery on my back. I then did 1 month oral antibiotics. The surgeon (without any blood tests or further images) pronounced me better. I was in horrific pain and when I moved at all, I could feel my lower back moving. (very unsettling feeling). Since the neurosurgeon pronounced me better, I said f*** him and went back to a physical medicine specialist. He was royally pissed that the neurosurgeon would discharge me in such horrible shape. He did the blood tests you are talking about (SED rate, C-Reactive Protein, and CBC – the first two test for chemicals in the blood from lots of inflammation, the latter for high white blood cells). They were normal, but an MRI showed that the ongoing infection in the disc (discitis) had eaten away the majority of what remained on L4/L5 and part of the bone. I am in horrible pain (I see the Phys Med doctor tomorrow – he called me on monday with the findings of the MRI) and he’s going to switch me from Oxycontin to Duragesic. Like your case, the neurosurgeon is blowing him off. I recommend that you do what I am doing. First, work with your primary care doctor and get a neurosurgeon who will look further for infection, or, an infectious disease specialist. Then, contact an attorney. I am suing my neurosurgeon for malpractice. I went to him with all of the early indications of discitis and he was too busy to consider the possibilities. The infection has now destroyed part of my vertabrae and the remaining part of my disc. I’m sorry to hear of your suffering and illness. I’ve been there and am there. It sure isn’t fun. Sorry to ramble Martin
– Hide quoted text — Show quoted text -> I’ll try not to be too long winded, but I need some help. I’m a 33 > year female, in relatively good health. I feel like I’m going nuts! > My legs ache something awful and no one knows why. I’ve found old > postings of people with similar reactions but can’t contact any of > them (I tried). I hope someone out there can help me. > In October of this year I had (excuse the spelling please, this is not > my area of expertise!) Anterior Disc Replacement surgery at C5-7. > They removed my disc and replaced it with a piece of my hip bone and > covered this area with a titanium plate. I recovered very well from > the surgery. I returned to work after 2 1/2 weeks and was just taking > 600mg Ibuprophen. > For the past month and a half (basically since I stopped all meds and > went back to work), I have been having flu-like symptoms. I have a > slight fever, major aching joints and muscles… primarily in my hands > and legs and lots of headaches. I feel like I have a raging fever but > it’s only like 100.8. I called my surgeon, (he’s released me), and he > said that since its both legs, it can’t have anything to do with my > surgery and for me to call my regular doctor. > My regular doctor took blood and it all came back normal. With the > exception of something he called a Sig rate??? or something like > that.. he said it was elevated which indicated internal inflammation. > He ordered a CT scan of my surgery site and it came back with a > POSSIBLE fracture behind the plate. He called my surgeon to get his > advice but he won’t return my regular doctors phone calls. My doctor > feels that perhaps I’m allergic to the titanium plate and is getting > ready to refer me to a rhuemetologist or an internal medicine doctor. > Noting else has been mentioned about the possible fracture. It could > have been a streak from the plate of a slight movement on my part. > My latest symptom (my doctor hasn’t seen yet) is that I’ve developed a > rash on my chest. Skin is kind of splotchy, with no itching. > Anyone have any ideas? Please post or email me!!!!
I’ll try not to be too long winded, but I need some help. I’m a 33 year female, in relatively good health. I feel like I’m going nuts! My legs ache something awful and no one knows why. I’ve found old postings of people with similar reactions but can’t contact any of them (I tried). I hope someone out there can help me. In October of this year I had (excuse the spelling please, this is not my area of expertise!) Anterior Disc Replacement surgery at C5-7. They removed my disc and replaced it with a piece of my hip bone and covered this area with a titanium plate. I recovered very well from the surgery. I returned to work after 2 1/2 weeks and was just taking 600mg Ibuprophen. For the past month and a half (basically since I stopped all meds and went back to work), I have been having flu-like symptoms. I have a slight fever, major aching joints and muscles… primarily in my hands and legs and lots of headaches. I feel like I have a raging fever but it’s only like 100.8. I called my surgeon, (he’s released me), and he said that since its both legs, it can’t have anything to do with my surgery and for me to call my regular doctor. My regular doctor took blood and it all came back normal. With the exception of something he called a Sig rate??? or something like that.. he said it was elevated which indicated internal inflammation. He ordered a CT scan of my surgery site and it came back with a POSSIBLE fracture behind the plate. He called my surgeon to get his advice but he won’t return my regular doctors phone calls. My doctor feels that perhaps I’m allergic to the titanium plate and is getting ready to refer me to a rhuemetologist or an internal medicine doctor. Noting else has been mentioned about the possible fracture. It could have been a streak from the plate of a slight movement on my part. My latest symptom (my doctor hasn’t seen yet) is that I’ve developed a rash on my chest. Skin is kind of splotchy, with no itching. Anyone have any ideas? Please post or email me!!!!
The test is SED rate. It measures inflammation. Your symptoms sound a lot like mine (I have systemic lupus and fibro). I hope you feel better soon and it’s nothing serious! Nicole
– Hide quoted text — Show quoted text -> I’ll try not to be too long winded, but I need some help. I’m a 33 > year female, in relatively good health. I feel like I’m going nuts! > My legs ache something awful and no one knows why. I’ve found old > postings of people with similar reactions but can’t contact any of > them (I tried). I hope someone out there can help me. > In October of this year I had (excuse the spelling please, this is not > my area of expertise!) Anterior Disc Replacement surgery at C5-7. > They removed my disc and replaced it with a piece of my hip bone and > covered this area with a titanium plate. I recovered very well from > the surgery. I returned to work after 2 1/2 weeks and was just taking > 600mg Ibuprophen. > For the past month and a half (basically since I stopped all meds and > went back to work), I have been having flu-like symptoms. I have a > slight fever, major aching joints and muscles… primarily in my hands > and legs and lots of headaches. I feel like I have a raging fever but > it’s only like 100.8. I called my surgeon, (he’s released me), and he > said that since its both legs, it can’t have anything to do with my > surgery and for me to call my regular doctor. > My regular doctor took blood and it all came back normal. With the > exception of something he called a Sig rate??? or something like > that.. he said it was elevated which indicated internal inflammation. > He ordered a CT scan of my surgery site and it came back with a > POSSIBLE fracture behind the plate. He called my surgeon to get his > advice but he won’t return my regular doctors phone calls. My doctor > feels that perhaps I’m allergic to the titanium plate and is getting > ready to refer me to a rhuemetologist or an internal medicine doctor. > Noting else has been mentioned about the possible fracture. It could > have been a streak from the plate of a slight movement on my part. > My latest symptom (my doctor hasn’t seen yet) is that I’ve developed a > rash on my chest. Skin is kind of splotchy, with no itching. > Anyone have any ideas? Please post or email me!!!!
>I never heard of it until a few minutes ago. I don’t understand the product >or the approach.
[snip] Thanks for the link. Oral Hectorol definitely belongs on my Vitamin-D Analogs page, even though it appears to be an analog of vitamin D2 instead of D3. http://psorsite.com/calcipo.html It’ll probably be a competitor with Dovonex, if the testing pans out. Judging by the other drugs listed on Bone Care’s chart, I wouldn’t expect this one to hit the streets as approved for psoriasis until at least 2005. – Dave W. http://psorsite.com/
I never heard of it until a few minutes ago. I don’t understand the product or the approach. "Bone Care (www.bonecare.com) is a pharmaceutical company engaged in discovering, developing and commercializing improved vitamin D-hormone therapies to treat secondary hyperparathyroidism in patients with kidney, or renal disease, and osteoporosis, and other diseases including psoriasis and cancers of the prostate, breast and colon." Note ‘Psoriasis’ at the bottom of the chart here: http://www.bonecare.com/company/product_pipeline.html
>I never heard of it until a few minutes ago. I don’t understand the product >or the approach. >"Bone Care (www.bonecare.com) is a pharmaceutical company engaged in >discovering, developing and commercializing improved vitamin D-hormone >therapies to treat secondary hyperparathyroidism in patients with kidney, or >renal disease, and osteoporosis, and other diseases including psoriasis and >cancers of the prostate, breast and colon."
Well, Dovonex is a vitamin-D derivative, so maybe they’re working on something along those lines. J.
Hang in there Steve .. You are in my thoughts and prayers .. and good luck with the weather and the remicade Peace and Love Maryjo
{{{{{Steve}}}}} Sorry to hear about your dad. Hope he starts getting the care he ought to have. My dad is still in the nursing home, and the care he is getting is just great. I have nothing but the highest praise for the care he is getting. Only occasionally does he recognise my brother or his wife.(my brother’s wife that is) They always have everybody up and dressed whenever they visit. Hope you are able to get off the prednisone. Take care & be well. Howard UC since 1995 – Hide quoted text — Show quoted text – > Glad you asked. I am supposed to leave tomorrow for appointments with > my GI and an infusion of Remicade on Friday, but the weather is being > most uncooperative, so that remains to be seen! > My father came home from the Rehab Center for a week, where upon he > slipped out of his chair and broke his leg just above the ankle. He’s > now back in rehab, but we are slightly concerned that they are just > letting him lie in bed and sleep all day. After all, we could have > left him in bed and ignored him all day here at home! For a lot less > money! And money is becoming an issue as his days mount up. We were > under the impression that they were going to be getting him up into a > chair every day, but so far, he’s not been out of the bed, and they > aren’t even dressing him. His mental status remains fair — he knows > us, but some things aren’t quite right — he can tell you how old his > kids are, but he will say that he is 48 — just three years older than > his oldest child! Interestingly enough, after I had corrected him once > or twice, he stopped answering the question and would just look at me > and grin and tell me to answer when someone asked! He’s not quite > himself, but he’s still pretty sharp. > As for myself, I continue to suffer various problems. As my doc was > out of Vioxx, I am in quite a bit of pain — especially as I am > tapering my prednisone. Currently at 20 mg/day and will begin tapering > by 2.5 mg/wk next week. I have had some real problems with the > reductions — shaky hands, increased fatigue and pain. I’ve also > noticed slight increases in bleeding, gas and cramps when I reduce, > but everything seems to let up some after a few days. My appetite is > weird — sometimes I really want to eat, and sometimes I don’t want to > think about it. I think the gas and cramping that comes with most of > the bowel movements really turns my appetite off some. > They were concerned that I was developing chemical diabetes, but my > fasting blood sugar is running around 78 — which may actually be too > low. My doc is already concerned that I’m not absorbing b12 properly, > and leg cramps tell me that I’m not absorbing postassium properly, and > all of this may be related to my need for more sleep and extreme > fatigue. I mean, I’ve really slept the last few weeks! Of course, I > spent 8 hours in the ER with Dad last week before they finally moved > him into a room. ARGH! > So, if we can get the nutrients right, do something for the severe > bowel cramps when I have bowel movements, then the Remicade may be > able to resolve a lot of the other issues and get me back off > prednisone. I wonder if we should check my Thyroid function as well. > Anyway, I hope to be getting better! No, I am getting better, but it’s > sometimes hard to tell because of the damage that my system has > already taken due to this disease and the treatment! > Ah, well. Such is life! Hope you all are doing better! > love, > steve (H) > CD Class of ‘82 > ASCC on the WWW: http://ascc.healingwell.com > http://www.newsfeed.com The #1 Newsgroup Service in the World! > —–= Over 100,000 Newsgroups – Unlimited Fast Downloads – 19 Servers =—–
Glad you asked. I am supposed to leave tomorrow for appointments with my GI and an infusion of Remicade on Friday, but the weather is being most uncooperative, so that remains to be seen! My father came home from the Rehab Center for a week, where upon he slipped out of his chair and broke his leg just above the ankle. He’s now back in rehab, but we are slightly concerned that they are just letting him lie in bed and sleep all day. After all, we could have left him in bed and ignored him all day here at home! For a lot less money! And money is becoming an issue as his days mount up. We were under the impression that they were going to be getting him up into a chair every day, but so far, he’s not been out of the bed, and they aren’t even dressing him. His mental status remains fair — he knows us, but some things aren’t quite right — he can tell you how old his kids are, but he will say that he is 48 — just three years older than his oldest child! Interestingly enough, after I had corrected him once or twice, he stopped answering the question and would just look at me and grin and tell me to answer when someone asked! He’s not quite himself, but he’s still pretty sharp. As for myself, I continue to suffer various problems. As my doc was out of Vioxx, I am in quite a bit of pain — especially as I am tapering my prednisone. Currently at 20 mg/day and will begin tapering by 2.5 mg/wk next week. I have had some real problems with the reductions — shaky hands, increased fatigue and pain. I’ve also noticed slight increases in bleeding, gas and cramps when I reduce, but everything seems to let up some after a few days. My appetite is weird — sometimes I really want to eat, and sometimes I don’t want to think about it. I think the gas and cramping that comes with most of the bowel movements really turns my appetite off some. They were concerned that I was developing chemical diabetes, but my fasting blood sugar is running around 78 — which may actually be too low. My doc is already concerned that I’m not absorbing b12 properly, and leg cramps tell me that I’m not absorbing postassium properly, and all of this may be related to my need for more sleep and extreme fatigue. I mean, I’ve really slept the last few weeks! Of course, I spent 8 hours in the ER with Dad last week before they finally moved him into a room. ARGH! So, if we can get the nutrients right, do something for the severe bowel cramps when I have bowel movements, then the Remicade may be able to resolve a lot of the other issues and get me back off prednisone. I wonder if we should check my Thyroid function as well. Anyway, I hope to be getting better! No, I am getting better, but it’s sometimes hard to tell because of the damage that my system has already taken due to this disease and the treatment! Ah, well. Such is life! Hope you all are doing better! love, steve (H) CD Class of ‘82 ASCC on the WWW: http://ascc.healingwell.com http://www.newsfeed.com The #1 Newsgroup Service in the World! —–= Over 100,000 Newsgroups – Unlimited Fast Downloads – 19 Servers =—–
> Hi all, > I am accumulating a list of things that cause diarrhea in cats (and > dogs). Anyone got any elusive ones? Diseases that the vet took a while > to id? > I have a list of all the common causes. > Can you add to this list?
Milk, if more than a spoonful or two, for many cats. — "There’s a seeker born every minute."
You might add antibiotics. They destroy the intestinal bacteria. -MIKE
- Hide quoted text — Show quoted text – > Hi all, > I am accumulating a list of things that cause diarrhea in cats (and > dogs). Anyone got any elusive ones? Diseases that the vet took a while > to id? > I have a list of all the common causes. > Can you add to this list? > acute >
I lost 40 lbs when I was first on Enbrel. But I had a good pred taper going at that time too. When the pred came back combined with the 8 months in the wheel chair, I gained 30 of it back. Darn….maybe it was the PPA in the Entex LA that had been causing the weight loss??????? — Cyberhugs, DianeW
– Hide quoted text — Show quoted text -> drat! is this fair??? > diane >FRom the American College of Rheumatology (ACR): >Weight Gain Associated with the Administration of Tumor Necrosis Factor >Alpha Antagonists in Patients with Rheumatoid Arthritis >Category: 17 RA-treatment >J E Fonseca1, H Canh